Sjögren’s Podcast Series
Episode One – Understanding Sjögren’s
In July 2022 RCSI researchers and Sjögren’s patient advocated began a collaborative project with the Acuity Foundation Ireland. The aim of this project is to raise awareness of Sjögren’s amoung patients and healthcare professionals.
Listen to this fascinating discussion between Deirdre Collins, a patient advocate living with Sjögrens Disease, and Dr. Joan Ni Gabhann-Dromgoole, Senior Lecturer RCSI about their experience of collaborating to involve patients with researchers, facilitated by Lorna Kerin, RCSI Manager of Public Patient Involvement (PPI).
Sjögren’s Disease is an auto-immune disorder the body’s immune system attacks its own healthy cells that produce saliva and tears. While the main symptoms are dry mouth, dry eyes and fatigue, the entire body system can be adversely affected including the skin, joints, muscles, blood, lung, heart, kidney and nervous system. Treatments can include eye drops, medications, and eye surgery.