Sjögren’s Information for Healthcare Professionals
To help healthcare providers learn more about Sjögren’s, we have compiled a list of some useful websites, videos, journal articles and clinical guidelines. We recommend starting with the two highlighted resources which give a good overview of the patient’s perspective and management strategies for the most common symptoms.
Sjögren's Research Ireland
Sjögren’s Research Ireland has a host of resources including webinars, podcast, patient information leaflet, video about eye research.
American Sjögren's Foundation
British Sjögren's Syndrome Association
‘Looking After Yourself‘ Youtube lecture (1 hour) on practical self-management strategies by Dr Elizabeth Price, Rheumatologist NHS Great Western Hospital & BSSA Medical President.
‘Fatigue in Sjögren’s’ Youtube lecture (1 hour) by Prof Wan-Fai Ng, Professor of Rheumatology, Newcastle University with Sjögren’s Europe & BSSA.
British Society of Rheumatology
2023 guidelines (due shortly)
European League Against Rheumatism
Sjögren’s Advocate website is run by Dr Sarah Schafer MD.
Sjögren’s is More Than “Just Sicca” PDF summarising systemic manifestations.
Sjögren Europe is a European federation of national associations representing Sjögren’s patients.
Sjogren’s: the European patients’ community perspective. Article by Vieira et al in Clinical & Experimental Rheumatology, 2021.
‘Sjögren’s Research News with updates on European Project NeceSSity’ Youtube lecture (1 hour) by Prof Xavier Mariette MD, PhD, Head of Rheumatology Bicetre Hospital with Sjögren Europe.
‘Dry Mouth & Saliva in Sjogrens’ Youtube lecture (1 hour) Dr Henk Brand, Associate Professor at the Academic Centre of Dentistry Amsterdam (ACTA) with Sjögren Europe.
‘Sjögren’s and the Autonomic Nervous System’ Youtube lecture (45 min) by Dr. Brent Goodman, Director of the Autonomic Lab at Mayo Clinic in Scottsdale, AZ with Dysautonomia International.
John Hopkins Sjögren's Centre
Neurologic complications of Sjögren’s summary
Sjögren’s disease overview video series
Sjögren's Syndrome News
Other Sjögren's Guideline Papers
Retamozo, S., Baldini, C., Bootsma, H. et al. (2021). Therapeutic Recommendations for the Management of Older Adult Patients with Sjögren’s Syndrome. Drugs Aging 38, 265–284.
Sisó-Almirall A, Meijer JM, Brito-Zerón P, Conangla L, Flores-Chavez A, González de Paz L, Bootsma H, Ramos-Casals M. (2021). Practical guidelines for the early diagnosis of Sjögren’s syndrome in primary healthcare. Clin Exp Rheumatol. 39(6), Suppl 133,197-205.
Tomiita M. et al. (2021). Clinical practice guidance for Sjögren’s syndrome in pediatric patients – summarized and updated Modern Rheumatology 31(2), 283-293.
Links to Sjögren's Centres of Excellence & Research Centres Around the World
Sjögren’s Expertise Center Groningen in the Netherlands.
Newcastle University Sjogren’s Syndrome Biobank in the UK.
Royal Victoria Eye & Ear Hospital in Ireland (Ocular Immunology Research).
The NeceSSity project is a multicentre clinical trial. Although it’s a European study, Ireland does not have a centre.
ERN Re-CONNET for Sjögren’s. Although this is a European Research Network, Ireland is not yet a member.
These Sjögren’s resources are useful to all healthcare providers & specialities, including: GPs, Rheumatology, Neurology, Ophthalmology, Optometry, Oral Surgery, Dentistry, Nursing, Allied Health Professionals, Occupational Therapy, Psychology, Social Work, Physiotherapy, Speech & Language Therapy, Pharmacy, Social Care etc.