To help healthcare providers learn more about Sjögren’s, we have compiled a list of some useful websites, videos, journal articles and clinical guidelines. We recommend starting with the two highlighted resources which give a good overview of the patient’s perspective and management strategies for the most common symptoms.
American Sjögren's Foundation
- Sjögren’s Foundation website
- ****‘Sjögren’s: The Patient’s Perspective’ article by Kathy Hammitt (Sjögren’s Foundation Vice President) in Clinical & Experimental Rheumatology, 2020.
- Information on diagnostic tests for Sjögren’s
- Sjögren’s Foundation free quarterly medical & scientific newsletter, sign up here
- Sjögren’s Foundation Clinical Practice Guidelines for systemic manifestations, pulmonary manifestations, oral management, and ocular management.
- Summary of patient survey 2021 Living with Sjögren’s
British Sjögren's Syndrome Association
****’Looking After Yourself‘ Youtube lecture (1 hour) on practical self-management strategies by Dr Elizabeth Price, Rheumatologist NHS Great Western Hospital & BSSA Medical President.
‘Fatigue in Sjögren’s’ Youtube lecture (1 hour) by Prof Wan-Fai Ng, Professor of Rheumatology, Newcastle University with Sjögren’s Europe & BSSA.
European League Against Rheumatism
Sjögren Europe is a European federation of national associations representing Sjögren’s patients.
Sjogren’s: the European patients’ community perspective. Article by Vieira et al in Clinical & Experimental Rheumatology, 2021.
‘Sjögren’s Research News with updates on European Project NeceSSity’ Youtube lecture (1 hour) by Prof Xavier Mariette MD, PhD, Head of Rheumatology Bicetre Hospital with Sjögren Europe.
‘Dry Mouth & Saliva in Sjogrens’ Youtube lecture (1 hour) Dr Henk Brand, Associate Professor at the Academic Centre of Dentistry Amsterdam (ACTA) with Sjögren Europe.
‘Sjögren’s and the Autonomic Nervous System’ Youtube lecture (45 min) by Dr. Brent Goodman, Director of the Autonomic Lab at Mayo Clinic in Scottsdale, AZ with Dysautonomia International.
Sjögren's Syndrome News
Other Sjögren's Guideline Papers
Retamozo, S., Baldini, C., Bootsma, H. et al. (2021). Therapeutic Recommendations for the Management of Older Adult Patients with Sjögren’s Syndrome. Drugs Aging 38, 265–284.
Sisó-Almirall A, Meijer JM, Brito-Zerón P, Conangla L, Flores-Chavez A, González de Paz L, Bootsma H, Ramos-Casals M. (2021). Practical guidelines for the early diagnosis of Sjögren’s syndrome in primary healthcare. Clin Exp Rheumatol. 39(6), Suppl 133,197-205.
Tomiita M. et al. (2021). Clinical practice guidance for Sjögren’s syndrome in pediatric patients – summarized and updated Modern Rheumatology 31(2), 283-293.
Links to Sjögren's Centres of Excellence & Research Centres Around the World
Sjögren’s Expertise Center Groningen in the Netherlands.
Royal Victoria Eye & Ear Hospital in Ireland (Ocular Immunology Research).
The NeceSSity project is a multicentre clinical trial. Although it’s a European study, Ireland does not have a centre.
ERN Re-CONNET for Sjögren’s. Although this is a European Research Network, Ireland is not yet a member.
These Sjögren’s resources are useful to all healthcare providers & specialities, including: GPs, Rheumatology, Neurology, Ophthalmology, Optometry, Oral Surgery, Dentistry, Nursing, Allied Health Professionals, Occupational Therapy, Psychology, Social Work, Physiotherapy, Speech & Language Therapy, Pharmacy, Social Care etc.