Information for patients living with Sjögren’s
In collaboration with Sjögrens patient advocates we have created some important healthcare resources.
On July 19th 2022 we successfully launched the inaugural Sjögrens Syndrome Knowledge Exchange Event lead by Dr Joan Ní Gabhann-Dromgoole and Sjögrens Ireland with support from the RCSI Public Patient Involvement (PPI) team.
The aim of the event was to support and empower those living with Sjögrens Syndrome to become their own advocates. Scientists from the Ocular Immunology Research Group RCSI, experts in public patient involvement and Sjögrens patient advocates provided updates on their partnership and discussed with attendees how to improve Sjögrens Research in Ireland.
This event was launched by Prof Tracy Robson, – Professor & Head of School of Pharmacy and Biomolecular Science, RCSI University of Medicine and Health Sciences. The researcher-patient co-designed webinar also included two guest speakers, Dr Sabina Brennan, who discussed brain fog, and Dr Eleanor O’Sullivan who discussed dental care for those living with Sjögrens. It also showcased the findings from patient informed research studies conducted in 2021 and highlight the advances that have been made as a result of scientist-patient partnerships.
Below is a link to a recording of this event.
Click here to view the Sjögrens Syndrome Knowledge Exchange Event 2022
Below is a link to a recording of the inaugural Sjögrens Syndrome information webinar that was organised in 2021.
This recording features key information regarding: Ophthalmology, Dental care, Dermatology, Womens Health, Rheumatology, public patient involvement (PPI) in research and current Sjögrens research from the Ocular Immunology Research Group in RCSI. This event featured Sjogrens patient advocate Deirdre Collins who shared her disease journey with attendees.
When you click on the link you will be directed to input your name and email address. Press register and the video will play.
Click here to go to the registration page for the recorded video.